Scott Baio and his wife Renee have opened up about their daughter’s health scare to Celebrity Baby Blog.
Just a day after the couple brought her home, they were told that Bailey DeLuca Baio, who was born prematurely last November, had tested positive for GA-1, a potentially fatal metabolic disorder that can cause seizures and lead to coma.
It was not until little Bailey DeLuca was 10 weeks old, and after several tests, that Scott and Renee received the news that their daughter did not have the disorder. The original test had been a false positive.
Scott described the waiting as, “the worst time in my life.”
“Every breath that you take, every thought that you have, every moment that you’re conscious, it’s all you’re thinking about,” he told CBB. “The disease is a constant in your brain. It never leaves you.”
During those 10 weeks, the couple married and showed no outward signs of the struggle they were going through with their new baby.
But Renee said, “every time [Scott] would see a child, see a baby, he would just break down. It was so tough to go through the holidays, our wedding … all the while knowing, our kid may die.”
Now 7 months old, Bailey is a healthy little girl, but her parents would like to use their experience to help others. And hey are in the process of establishing a foundation to do just that.